It's time

It's time...

Readers, I abandoned you.  I have many reasons.  Too many to list.  So many that they would make your head swim.

As many of you who used to follow this blog knew, my uncle and godfather had a health crisis two years ago and my sister and I took on him and all his medical care.  For the last two years, we battled doctors, hospitals, dialysis and death, tooth and nail.

Last week, it all came to a head.  And Death won.

I cannot describe what is was like to watch him come to terms with his own mortality, when he had managed to escape it REPEATEDLY over the course of 35 years.  His biggest victory was 19 years ago, when after being told that he had 6 months to live if he didn't get a liver transplant, he managed to squeeze out almost 2 years AND receive one of the first liver transplants the University of Miami ever completed.

As I watched him listen to Pavarotti in his last few hours last Sunday, he smiled with pleasure.  He lived a good life; filled with adventure and excitement.  He got to say goodbye, he got to tell people how much he loved them, he had my grandparents come and escort him to Heaven's gates.  He turned in his 80 year old body battered and bruised.  He truly put it through hell as he sucked the marrow that life gave him.

For me, it has been hard.  Even though my sister and I did all that we could, we couldn't keep him healthy enough to creak out another 5 years.  We have been second guessing ourselves for the last week, wondering what we could have done differently.  Even though we lost our dad eleven years ago and should know that there is no negotiating with God's will, it doesn't make it any easier the second time around.

My uncle kept his life very compartmentalized.  It was easy for him to do it.  As a single man with no responsibilities, he pretty much answered to no one and did as he pleased.  It was hard for him to give up that independence two years ago, when we took over his affairs and clucked at the amount of Coke he consumed and how many ramen noodles he had stashed under his kitchen sink.  We reprimanded him on the effects of too much sodium, too much soda, on his dialysis and failing kidneys.  He would smile, tell us he would stop, and continue to do whatever he pleased.

We met some of his closest friends the day before he died.  They flew cross country to be with him in his final hours.  They stood shoulder to shoulder with my sister and I as he breathed his last.  They came back to his apartment and told us which of his paintings should get us the most money.  They told us of the man they knew, one who once decided that for a whole year, they should always have a bottle of champagne whenever they got together.   The man who traveled to all the corners of the Earth and never gave a rat's ass about what other people thought.

Today, I picked up his ashes.  We will be having a funeral Mass and interment sometime this week.  As I peered into the cardboard box that held his ashes and saw the toe tag that undoubtedly hung from his foot, I wondered what he would make of being contained in such a plain box when he had such a colorful life.  I wonder how my mother and my aunt, his sister will hold themselves together later this week, when they will see what is left of someone they loved so much.

I find myself being stoic at times, afraid of unleashing the sadness that is welling up in me.  My oldest son seems to sense that underneath all that strength, there is a very sad little girl who misses the uncle who would show up with extravagant, unpractical gifts and would disappear for month, years at a time.  My boys and husband are cautious around me, afraid that I will break.  And that worries me.  And it makes me very sad.

It has been a hard year.  My mother continues to deteriorate.  Yesterday, my sister and I went to get her a wig, as the chemotherapy has ravaged her head.  All this in preparation for a funeral.  Now, her head looks better, but her body continues to turn on her, robbing her of movement, denying her comfort.  I wonder how much this will break her spirit when she watches the urn that holds her favorite brother go into a wall, near her husband, near where she one day will be.

When we were leaving yesterday, my nieces spotted a small little store that had just the kind of impractical, extravagant items that my uncle would have been drawn to.  I saw a pink kitty umbrella that had caught my oldest niece's eye.  My younger niece found a mermaid one. 

And I did as my uncle would have wanted.  I bought them those umbrellas and smiled.  Because I knew that somewhere in the clouds, surrounded by beautiful things and clutching a champagne bottle in each hand, singing along with Luciano, he was nodding in agreement.  But I won't disappear for months, years.  I will surround myself with the joy that these two girls and my three sons give me, and hope that I get to say goodbye, listening to beautiful music, surrounded by love.

An explanation to the long absence...

As you have noticed if you frequented among these parts, things have been amiss for the past few months. While I have posted every week through Six Word Fridays, even that has been difficult and has, often times, alluded to all that has transpired since late last spring.

Life happens. And usually not in the way or shape we would like it to.

And because all that has transpired in these past months has been difficult and painful, it would have made sense to write about it here; to make light of it, to poke fun at the situation I found myself in. To be witty.

But I couldn't. For the first time in a very long time, it was just too painful to write. I had no way of expressing all the sadness, frustration, and fear I was experiencing.

And if I put it in writing, it would be real. I desperately wanted it not to be.

As many of you know, my beloved mother in law spent nearly a year battling breast cancer. Our family weathered the storm of the complications, the chemo, seeing her frail and warrior-like. Little did we know that we were in for more. We had another scare in the summer, but by now, we were also seasoned warriors.

My uncle, who has no children and is a liver transplant recipient, had a MAJOR health crisis. In early May, he was whisked away by ambulance in the middle of the night, and began an extended stay in the hospital and later rehab (and later the hospital again) before he took up residence at the assisted living center where my mother lives in mid-August.

The process of dismantling a life is an arduous one. So much to become acquainted with, so much paperwork and legality, to make repairs on a home, pack it up, put it for sale. So much to be made responsible for, when you are already responsible for so much.

My boys and I, along with my sister and my aunt (my mother's older sister) spent our summer cataloging my uncle's items, making piles for the dump or charity, and packing his things to be moved into his new apartment. I cannot tell you what a comfort it was to see my boys helping us in any way they could. Whether it was trudging down the stairs laden with books, to packing and sealing boxes, to making lists of things to be done, my two older sons were workhorses last summer.

And it quite literally broke my heart to see them so hard at work, peering curiously at me as I often stood, bewildered with worry and anxiety in the middle of my uncle's rundown house, wondering how the hell I was doing this again.

That flurry of activity was during the day. At night, my sister and I would go see him at the hospital, often wondering what his prognosis was going to be, wondering how in the world we were going to handle all of this new responsibility when school started back. Somehow, we would manage.

We emptied his house, made it sellable, sold it, and breathed a heavy sigh of relief when he moved into his new place, somewhat healthy and begrudgingly happy.

In the midst of all this, my mother's physical therapist was concerned at the pain she was experiencing during therapy. She ordered a routine MRI and uncovered a huge mass on her stomach.

Welcome to Round 2.

We had no sooner finished dealing with the immediate needs of my uncle when my mother was diagnosed with a somewhat rare cancerous tumor on her stomach. Her surgery was successful in that it removed a 13 centimeter tumor. However, she spent the better part of a week in ICU , unconscious, when she experienced difficulty breathing on her own a day after the surgery.

More tests.

More worry.

Another tumor was discovered on her larynx.

One that was seen and commented on by three different doctors.

One that miraculously wasn't there when they went to biopsy on Halloween Day.

The hell that went through was nothing compared to the generosity of spirit of our family, friends and coworkers. I have never felt so much love and support in all my life.

I am happy to say that things have somewhat returned to normal. We had a peaceful Thanksgiving.

We had so much to be grateful for. So many lives saved during a course of 365 days.

I had my "normal" Christmas. The one I so longed for last year when my world was collapsing around me. I had all my folks. My mother in law. My mother. My uncle and my aunt. They were all alive. My handsome new nephew, my brother and sister in law. My sister and her family. Every single person who weathered the storms of 2011 with us. They were all smiling; happy and healthy; under one roof. My roof. Even writing this now, the words blur through the tears.

So you can imagine why I couldn't write. Too much. Too fast. It was exhausting to live it, overwhelming to even think about putting it out there.

The prognosis are pretty good all around now. My mother in law is doing better than fine. She is back to doing her thing, on her own terms, and the mischievous gleam in her eyes has returned.

My uncle in is dialysis three times a week, but now he has to deal with my sister and I. I think he is slightly pleased that things fell into place as they did. He seems happy and has adjusted well, considering.

My mother's latest PET scan came back clean. She is on a chemotherapy that was originally given to leukemia patients. Imagine my surprise when I discovered it was funded by the Leukemia and Lymphoma Society, whom I have fundraised and run for since 2010.

I hope that I am back to this, my writing in my space, more regularly now.

I hope you understand my lingering absence.

I know that soon, I will be laughing again. And taking you along for the ride...

Sounds of healing...

The blood pressure monitor whirs,

the life-giving oxygen machine hums.

Outside, nurses rush to and fro

caring for so many, including Mom.

Over so many years, different hospitals,

different patients, different diagnosis, same fear.

Seeing your parent become frail, sick,

never gets easier, just less unexpected.

The silence of healing: miraculous, incredible,

is a welcomed sound, however temporary.

What sounds warm your heart?  Visit Melissa's Six Word Fridays to find out about the buzz!

Another move...

Another fall. Another phone call. Worry.

Another set of plans gone awry.

Another chance to do what's right.

Another mess to efficiently clean up.

A house to box up, sell.

Another move to a new place,

to start over at the end.

Dismantling and rearranging lives already lived

never gets any easier; less heartbreaking.

And yet, when given the options,

moving, starting over at the end

is better than hearing, "They're gone."

Because of love, the move's orchestrated,

the worries lessen a bit more.

Others care and monitor, feed, bathe.

And all that's left to do

is love until the last move.

What moves you? Visit Melissa and find out more about Six Words Fridays.

A life, as told in pictures

Monday night, my husband and I had my sister come over to watch the boys. The reason? One of our closest friend's grandmother had passed away.

Normally, I am this family's official representative at funerals. John, squeamish about the whole business of death and funerals, will stay with the kids.

But these are our closest friends. I have known D since I was thirteen years old.   We went to junior high together.  We went to high school together and managed to hang out during breaks from college.  D met M at college.  They moved down here and we become inseparable. They came to our wedding, we were part of their wedding party two years later. I found out I was pregnant with Matthew the day before M's first baby shower. I baptized M two and a half years later. Our kids consider themselves family. Because we are.

D has lost all four of his grandparents within the last four years. His mother, whose mother died, is an only child. She bore the responsibility of caring for her aging and sickly parents alone. She has now buried them.

So, Monday night, we drove in the bitter cold and went to sit with our friends. To hold their hands. To hug and whisper small words of comfort. To help lighten the burden of mourning. Again.

As the priest quietly said Mass, I held John's hand. I looked down and saw how much are hands have changed as they lay intertwined. How much they have stayed the same. I wondered what life has in store for us, how we will handle all the unknowns that lay before us.

After the funeral Mass, we made our way to see D's family, especially his mother, to offer our condolences. We noticed that they had made a display of pictures. Pictures that chronicled the life that had now passed from this one. A young woman. A bride next to her uniformed groom. A mother with her daughter. The first picture of the day they arrived to the United States to live out the American dream.

In viewing those pictures, I recognized some of the events, chuckled at how young we all looked, smiled at good times that are now memories. The life of this eighty four year old woman, reduced to photographs gleaned from a lifetime of memories. Of the happiest moments shared with her family, captured for all time.

I thought of all the other moments.  The ones we carry imprinted on our hearts.  The countless other moments that have no image other than the one deep within our souls. The ones we carry and browse through in the dark moments of sorrow.

It got me thinking.

How will our children display our lives when we pass? What conversations will come about as they glance at a picture of their father and I, captured in a moment of happiness? What will they remember of their own childhood? What stories will be told?

What kind of mother will they remember?

The week has been a blur. I have been short-tempered, tired, anxious. It has been too cold. The mornings have been hard. I haven't been able to run. I have been able to shake the creeping anxiousness.

Too many sad anniversaries are coming up. My aunt has been gone for a year. My grandfather has been gone for twenty two. Our dog has been gone for four years. My sister in law's mother passed on my sister in law's birthday, the very next day.

And yet, within that sadness, we will celebrate Susan's birthday. And our anniversary next week. And Christmas ten days later.

And there will be more pictures to chronicle this life together. As a family. As individuals.

To remember. To revisit. To comfort.